General Practitioner Autism Training and Mandatory Medical Training: A Cross-Sectional Study of GPs’ Knowledge, Attitudes and Practices
DOI:
https://doi.org/10.53103/cjess.v3i1.99Keywords:
Autism Training, General Practitioners (GPs), Healthcare Barriers, Mandatory Medical TrainingAbstract
Numerous physical conditions appear with increased frequency in autistic individuals in comparison to their non-autistic peers. These co-existing conditions are known to lead to higher morbidity, lower quality of life, and lower life expectancy in autistic adults. There is substantial evidence in the literature that many, if not most, General Practitioners (GPs) in the United Kingdom do not have the necessary understanding of autism to enable them to offer the same standard of service to their autistic patients that their non-autistic patients receive. This research project was set up, inter alia, to explore the attitudes of GPs to the introduction of autism training and the contentious issue of making GP training on any subject mandatory rather than voluntary. We wanted to better understand how autism training for GPs might be developed to maximise "take-up" and “buy-in” given that the demands on their time, including training demands, are such that autism is only one of many conditions vying for training time and mandatory training is anathema to many GPs. Key findings were that nearly three quarters of our respondents strongly agreed that training in autism is important for GPs, the same percentage of our participants had received little or no formal autism training, and there was a general dislike of any training being made mandatory. Training should be focused on barriers faced by autistic people in accessing healthcare as well as on autism as a medical condition. No respondent had received a significant level of training in autism although 40% of participants who had received training had been trained by an autistic individual.
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Arnold S. R., Higgins J. M., & Trollor J. N. (2020). Health services for Australian autistic adults: Commentary on “The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum” (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox). Research and Practice in Intellectual and Developmental Disabilities, 7(2),193-198. https://doi.org/10.1080/23297018.2020.1753566
Baksi A. K. (2020). Experiences in peer-to-peer training in diabetes mellitus: challenges and implications. Family practice, 27(suppl_1): i40-i45. https://doi.org/10.1093/fampra/cmp014
Beane A., Padeniya A., De Silva A. P. (2017). Closing the theory to practice gap for newly qualified doctors: evaluation of a peer-delivered practical skills training course for newly qualified doctors in preparation for clinical practice. Postgraduate Medical Journal, 93(1104), 592-596. http://dx.doi.org/10.1136/postgradmedj-2016-134718
Bradshaw P., Pellicano E., van Driel M., & Urbanowicz A. (2019). How can we support the healthcare needs of autistic adults without intellectual disability? Current Developmental Disorders Reports, 6(2), 45-56. https://doi.org/10.1007/s40474-019-00159-9
Bradshaw P., Pickett C., van Driel M. L., Brooker K., & Urbanowicz A. (2021). Recognising, supporting and understanding autistic adults in general practice settings. Australian Journal of General Practice, 50(3), 126-130. https://doi.org/10.31128/AJGP-11-20-5722
Butler A. C., & Raley N. D. (2015). The future of medical education: assessing the impact of interventions on long-term retention and clinical care. Journal of Graduate Medical Education, 7(3), 483-485. https://doi.org/10.4300/JGME-D-15-00236.1
Casanova M. F., Frye R. E., Gillberg C., & Casanova E. L. (2020). Comorbidity and autism spectrum disorder. Frontiers in Psychiatry, 11, 1273. https://doi.org/10.3389/fpsyt.2020.617395
Christensen J. H., Elsborg P., Melby P. S., Nielsen G., & Bentsen P. (2021). A Scoping Review of Peer-Led Physical Activity Interventions Involving Young People: Theoretical Approaches, Intervention Rationales, and Effects. Youth & Society. 53(5), 811-840. https://doi.org/10.1177/0044118X20901735
Coughlan B., Duschinsky R., O'Connor M. E., & Woolgar M. (2019). Identifying and managing care for children with autism spectrum disorders in general practice: A systematic review and narrative synthesis. Health & Social Care in the Community, 28(6), 1928-1941. https://doi.org/10.1111/hsc.13098
Davis A., & Shonhiwa T. (2019). Peer-to-Peer Training for Student Empowerment in Service Learning. Business Education Innovation Journal, 11(2).
Department of Health. (2014). Think Autism: An Update to the Government Adult Autism Strategy; https://www.gov.uk/government/publications/think-autism-an-update-to-the-government-adult-autism-strategy
Doherty, M., Neilson, S., O'Sullivan, J., Carravallah, L., Johnson, M., Cullen, W., & Shaw, S. C. (2022). Barriers to healthcare and self-reported adverse out-comes for autistic adults: A cross-sectional study. BMJ Open, 12(2), e056904. http://dx.doi.org/10.1136/bmjopen-2021-056904
Finn L. L. & Sturmey P. (2009). The effect of peer-to-peer training on staff interactions with adults with dual diagnoses. Research in Developmental Disabilities, 30(1), 96-106. https://doi.org/10.1016/j.ridd.2007.11.004
Flegg M., Gordon-Walker M., & Maguire S. (2015). Peer-to-peer mental health: a community evaluation case study. The Journal of Mental Health Training, Education and Practice. https://doi.org/10.1108/JMHTEP-04-2015-0019
Haydon, C., Doherty, M., & Davidson, I. A. (2021). Autism: making reasonable ad-justments in healthcare. British Journal of Hospital Medicine, 82(12), 1-11. https://doi.org/10.12968/hmed.2021.0314
Hirvikoski T., Mittendorfer-Rutz E., Boman M., Larsson H., Lichtenstein P., & Bölte S. (2016). Premature mortality in autism spectrum disorder. The British Journal of Psychiatry, 208(3), 232-238. https://doi.org/10.1192/bjp.bp.114.160192
McCormack G., Dillon A. C., Healy O., Walsh C., & Lydon S. (2020). Primary care physicians’ knowledge of autism and evidence-based interventions for autism: A systematic review. Review Journal of Autism and Developmental Disorders, 7(3), 226-241. https://doi.org/10.1007/s40489-019-00189-4
Malik-Soni N., Shaker A., & Luck H. (2021). Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood. Pediatric Research, 91(5), 1028-1035. https://doi.org/10.1038/s41390-021-01465-y
Michael J. (2008). Healthcare for All. Report of the Independent Inquiry into Access to Healthcare for People with Learning Disabilities. London: Department of Health; http://webarchive.nationalarchives.gov.uk/20130107105354/http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_099255
Milton D. E. (2012). On the ontological status of autism: the ‘double empathy problem’. Disability & Society, 27(6), 883-887. https://doi.org/10.1080/09687599.2012.710008
Nicolaidis C., Schnider G., & Lee J. (2021). Development and psychometric testing of the AASPIRE adult autism healthcare provider self-efficacy scale. Autism, 25(3), 767-773. https://doi.org/10.1177/1362361320949734
Parkin E., Bate A., Long R., Gheera M., Powell A., & Bellis A. (2016). Autism: overview of UK policy and services. Briefing paper; https://commonslibrary.parliament.uk/research-briefings/cbp-7172/
Sala R., Amet L., Blagojevic-Stokic N., Shattock P., & Whiteley P. (2020). Bridging the gap between physical health and autism spectrum disorder. Neuropsychiatric Disease and Treatment’, 16, 1605. https://doi.org/10.2147/NDT.S251394
Stigmar M. (2016). Peer-to-peer teaching in higher education: A critical literature review. Mentoring & Tutoring: Partnership in learning, 24(2), 124-136. https://doi.org/10.1080/13611267.2016.1178963
Unigwe S., Buckley C., Crane L., Kenny L., Remington A., & Pellicano E. (2017). GPs’ confidence in caring for their patients on the autism spectrum: an online self-report study. British Journal of General Practice, 67(659), e445-e452. https://doi.org/10.3399/bjgp17X690449
Walsh C., Lydon S., O’Dowd E., & O’Connor P. (2020). Barriers to healthcare for persons with autism: A systematic review of the literature and development of a taxonomy. Developmental Neurorehabilitation, 23(7), 413-430. https://doi.org/10.1089/aut.2018.0003
Whelan M. E., Carlin L., Musson H., & Adams E. J. (2021). Mixed Methods Process Evaluation of a National Peer-Led Training Program to Increase Brief Advice on Physical Activity Given by Health Care Professionals. Journal of Physical Activity and Health, 1(aop), 1-11. https://doi.org/10.1123/jpah.2021-0188
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Copyright (c) 2023 Nick Chown, Sebastian Shaw, Mary Doherty, Mona Johnson, Joanna Krupa, Nicola Martin, Molly Brooker-Corcoran
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